Library
Resource Library
On this page People Living with ALS will find information about;
Manual for People Living with ALS
ALS Fact Sheets
Resources for Children
ALS Society Lending Library
Manual for People Living with ALS
The ALS Society of Canada has created resources for People Living with ALS, their families and Healthcare Professionals.
Manual for People Living with ALS, Click here.
Manual pour les personnes vivant avec la SLA, Faites un déclic ici
(Mandarin) Manual for People Living with ALS, Click here
Coping with Grief, Strategies for People Living with ALS booklet, Click here.
ALS Fact Sheets
These easy to read and downloadable sheets from ALS Canada provide an overview on a variety of ALS related topics.
ALS & Cognitive Changes Fact Sheet, Click here.
ALS Facts Sheet, Click here.
ALS First Steps Fact Sheet, Click here.
ALS Ways to Help Fact Sheet, Click here.
ALS-MS-MD, How they differ Fact Sheet, Click here.
Alternative Treatments Fact Sheet, Click here.
Caregiver Stress Fact Sheet, Click here.
Clinical Trials Fact Sheet, Click here.
Compassion Fatigue Fact Sheet, Click here.
Complimentary Therapies Fact Sheet, Click here.
Coping with Grief Fact Sheet, Click here.
Genetic Testing for ALS Fact Sheet, Click here.
Natural Health Products Fact Sheet, Click here.
10 Facts about Pain Fact Sheet, Click here.
Primary Lateral Sclerosis Fact Sheet, Click here.
Reducing Stress Fact Sheet, Click here.
The Dangers of Unproven Therapies Fact Sheet, Click here.
Sexuality, Intimacy and Chronic Illness Fact Sheet, Click here.
Stem Cells Fact Sheet, Click here.
Ventilation: Options and Decision Making Fact Sheet, Click here.
Resources for Children
ALS Society of Canada's ALS411 is a specially designed wesite for Children and Teens. It offers interactive tools to provide information about ALS.
Visit www.als411.ca
ALS411 booklet for children: When someone special has ALS ( available on request)
ALS411 booklet for children: Helping Children cope with ALS (available on request)
ALS411 for teens: When your parent has ALS (available on request)
ALS Society Lending Library
In addition to Manual for People Living with ALS & ALS Fact Sheets the ALS Society of BC & Yukon also maintains a lending library. The Society's library consists of books, videos and DVDs about ALS, individual experiences with the disease, coping with disabilities and grief. There are also a number of booklets on strategies for breathing, eating, drinking and swallowing as well as information on communication and mobility.
Book List:
Personal Stories:
Closing Comments, Brian A. Smith
Cries of the Silent, Evelyn Bell
Flight to Freedom, Mae Fung Dung
Folded Swans, Erica Jacobs
For words: A journal of hope and healing, Chris Vais
I remember running; the year I got everything I ever wanted - and ALS, Darcy Wakefield
If they could only hear me, Ed Rice
In dreams, Elizabeth Grandbois
In sunshine and shadow, Judy Oliver
It couldn't happen - but it did, Harold McCullagh
Journeys with ALS, David Fegenbaum
Laugh, I thought I'd die, Dennis Kaye
Living beyond limits, David Spiegel
Luckiest Man, Michael J. Fox
Patti, Donna Graham
Six parts love, Roni Rabin
Tales from the bed, Jennifer Estess
Twilight of a dancer, Rosemary DeGraff
Waking up: Climbing through the darkness, Terry L. Wise
Why didn't somebody tell me about these things? , Lou Hamilton
For Caregivers:
124 Prayers for caregivers, Joan Guntzelman
A caregivers guide, Palliative Care Association of Alberta
A cup of comfort for inspiration, Colleen Sell
Aging is a family affair, Wendy Thompson
Caregiving: The spiritual journey of love, loss and renewel, Beth Witrogen McLeod
Creative Caregiving, James R. Sherman
Daily comforts for caregivers, Pat Samples
Guide des aidents naturels, Association Canadienne de Soin Palliatifs
I'll take care of you, Joseph Ilardo & Carole Rothman
Losing a parent, Alexandra Kennedy
May I walk you home? , Joyce Hutchinson
My reflections on grieving, Marion E. Stephany
Share the care, Cappy Capossela & Sheila Warnock
Someone you love is dying - how do you cope? , Charles A. Corr
User friendly homes, Patrick Simpson
For Children:
Living with grief: children, adolescents and loss, Kenneth Doka
Lou Gehrig: The luckiest man, David A. Adler
Good grief for kids, Katherine Dorn Zotovich
Grandpa, what is ALS? , Bonny Gold-Babins
Yours, mine and our children's grief, Elva Mertick
HealthCare:
Adapting to breathing changes, ALS Association
Adjusting to swallowing and speaking difficulties, ALS Association
ALS: Strategies for living, Tricia Glanfield
Coping with change, ALS Association
Functioning when your mobility is affected, ALS Association
I'm not what I used to be, Gloria Levi & Beryl Petty
Let me decide, D.W. Molloy & V. Mepham
Living with grief: Ethical dilemmas at the end of life, Hospice Foundation of America
Managing your symptoms and treatment, ALS Association
Nutrition:
Easy-to-swallow, easy-to-chew cookbook, Donna Weihofen
I can't chew cookbook, J. Randy Wilson
The dysphagia cookbook, Elaine Achilles
To borrow materials, please contact ALS Society of BC at 604-685-0737 or click here to request.