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Links

Links for Further Resources

There are many resources available online for both patients and caregivers. We will regularly be adding new websites of interest, and welcome suggestions and comments on links. Please email us with your suggestions.

Patient and Caregiver Priorities Survey 2007

Detailed Comment Summaries will be made available via email or printed copy to members of ALS Society of BC or ALS Society of Canada, please contact Lisa Hercus at 604-685-0737 ext. 226 or patientservices2@alsbc.ca  to make a request

 

Links Categories:

Financial Support

 

  • Autoplan Insurance Disability Discount, click here
  • BC Home Owners Grant, click here
  • BC PharmaCare, click here
  • Canada Pension Plan (CPP) Disability Benefit, click here
  • Choice in Supports for Independent Living (CSIL) , click here
  • Greater Vancouver Home Builders Association RAMPS Program, click here
  • London Drugs and Manulife Guarenteed Life Insurance, click here
  • Property Tax Deferment, click here
  • Registered Disability Savings Plan, click here
  • For assistance in person, over the phone or through email with the Registered Disability Savings Plan, contact BC Coalition of People with Disabilities (BCCPD). BCCPD can assist you to determine whether the RDSP is a good fit, become eligible, open an account and answer questions. BCCPD at 604-872-1278 or 1-800-663-1278, email rdsp@bccpd.bc.ca
  • TAXES - Amounts transferred from your spouse or common-law, click here
  • TAXES - Caregiver Tax Credit, click here
  • TAXES - Community Volunteer Income Tax Program (aide by CRA to file taxes), click here
  • TAXES - Disability Tax Credit, click here
  • TAXES - Disability Amount Transferred from a Dependant, click here
  • TAXES - Federal Excise Gasoline Tax Refund Program, click here
  • TAXES - Gov't of Canada - Employment Insurance Compassionate Care Benefits, click here 
  • TAXES - GST/HST Specially Equipped Motor Vehicle Rebate Application, click here
  • TAXES - Home Renovation Expenses, click here
  • TAXES - Refundable Medical Expenses Supplement, click here
  • TAXES - Spouse or Common-Law amount, click here
  • TAXES - What can a Person with Disabilities claim as a deduction or credit?   click here
  • TAXES - Which medical expenses are eligible?  click here
  • TAXES - Working Income Tax Benefit, click here

 

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Assistive Devices

  • ALS Society of BC Equipment Loan Program, click here
  • Residential Rehabilitation Assistance Program for Persons with Disabilities (RRAP - Disabilities), click here
  • Canadian Red Cross Health Equipment Loan Program, click here
  • Greater Vancouver Home Builders Association RAMPS Program, click here
  • Provincial Respiratory Outreach Program (PROP), click here  
  • Swap & Shop - Canadian Paraplegic Association, click here
  • Technology for Independent Living (TIL), click here  
  • TELUS Relay Service for TTY, click here
  • Tetra Society, click here 

Home Care and Community Support

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  • Government of British Columbia – Home and Community Care, click here
  • Choice in Supports for Independent Living (CSIL) , click here

 

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People Living with ALS Resources

  • Patients Like Me Website & Forum, click here  
  • George Goodwin’s ALS Independence, click here
  • ALS forums is an all-volunteer support group provided free of charge to anyone affected by ALS. ALS forums is the only fully moderated, absolutely free, ad-free, hassle-free online support group dedicated solely to ALS/MND patients and caregivers. click here
  • ALS Centre at GF Strong Rehab, click here 

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Caregiver & Family Resources

  • Province Wide: ALS Society of BC Caregivers Days, click here
  • Province Wide: ALS Society of BC Care Connections Program, click here
  • Province Wide: Links to Caregiver Workshops throughout BC, click here
  • Province Wide: BC Hospice Palliative Care Association, click here
  • Vancouver Area:North Shore Resource Guide for Family Caregivers - request your copy by contacting Helen at North Shore Community Resources 604-982-3313
  • Vancouver Island: Family Caregivers' Network Society (Victoria), click here
  • Vancouver Island: Jim Kazeil Foundation (Assistance for families affected by ALS) , click here

      Online

       Children's Resources

 

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Research Resources

  • International Alliance of ALS/MND Associations, click here
  • ALS Canada Research News, click here
  • The World Federation of Neurology website, includes information on ALS drug updates and clinical trials, click here
  • National Library of Medicine, click here  

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Transportation Resources

  • ALS Society of BC Transportation Assistance Program, click here
  • BC Government Travel Assistance Program (TAP), click here
  • HandyDART (varies by community, call 778-452-2860)
  • Hope Air (complimentary flights for those travelling for medical) , click here
  • Interior Health Authority - Health Connections Bus, click here
  • Northern Health Authority - Health Connections Bus, click here
  • People in Motion - Kelowna (loans out Wheelchair Vans), click here
  • SPARC - Parking Permit Program for People with Disabilities, click here
  • Taxi Saver Program, click here

Other Provincial Societies

  • ALS Canada, click here  
  • ALS Society of Alberta, click here  
  • ALS Society of Saskatchewan 1-306-949-4100
  • ALS Society of Manitoba, click here  
  • ALS Society of Ontario, click here
  • ALS Society of Quebec, click here  
  • ALS Society of New Brunswick, click here  
  • ALS Society of Newfoundland & Labrador, click here  
  • ALS Society of Nova Scotia1-866-625-7257
  • ALS Society of Prince Edward Island 1-902-439-1600

The US Organizations


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